From Julian's COTA journal
God has been so good to us during Julian's entire journey, and we have been his strongest advocates. I am sure I have rubbed people the wrong way in my tenacity to make sure Julian is well looked after, but my job isn't to have people like me: my job is to advocate for my son. But so far we have no complaints and we are winding up our time here in California.
We look forward to getting back to some normalcy once we leave here. We will go see friends in L.A. and go to Disneyland on Saturday the 4th, which will be fun for all of us, especially Julian.
Anyway thank you all for your continued interest in Julian's care and well-being.