From Julian's COTA journal
I realize it's been way too long since our last update, but suffice it to say that no news is good news. Julian is strong and healthy, and his Docs in Phoenix and Palo Alto are pleased with his progress. Needless to say, we as parents are thrilled with how things have gone over the past year - and what a year it's been!
It's hard to believe that 12 months ago we had just returned from our first coordination visit to Palo Alto to see if Julian would even be a viable candidate for Stanford's steriod-free protocol. He weighed around 25 lbs. (and was not growing) and his combined kidney clearance was below 10%. Today? He's over 40 lbs and his new kidney is doing what a kidney is supposed to be doing. What a miracle!
We'll try to get some fresh pics and/or videos up on the site so you smile along with us as he grows up in front of our eyes.