From Julian's COTA Journal.
We received a call today from the Docs at Denver Children's Hospital, advising us that Julian's most recent labs (earlier this week) were not good - his approximate kidney clearance is roughly 8% at present. They asked when exactly we might be getting the transplant in Palo Alto at the Children's Hospital at Stanford University.
So, we're off to Palo Alto on Monday in order to (hopefully) finalize things with them and activate Julian on their list. We're hoping that once he's active, it won't be more than a month or two (at most) before a viable kidney comes available.
Once we've finalized everything at Stanford, Stacy will return to Phoenix with Julian to spend time with her family, while I return to Colorado to resume work and close on the sale of our house. I'll be renting a place for a while, and commuting/telecommuting between here and Phoenix, until Stanford gives us the signal that a kidney may be available soon. At that time, Stacy and Julian will move up to the Ronald MacDonald House in Palo Alto, and I'll commute between CO and CA. Whew!
After the transplant, Stacy and Julian will reside at the Ronald MacDonald House for about 3 more months for follow-up, after which time they'll rejoin me here in Colorado.
It's going to be a very busy season as we each divide our time between several different places. Please pray that God sustains us through all of it, and most importantly, that God sustains Julian's health leading up to and following the transplant.