tag:blogger.com,1999:blog-303709552023-11-16T03:53:33.074-07:00Julian Xane Phillips'Cause Everybody Needs a Little JulianDavid J Phillipshttp://www.blogger.com/profile/17452811418423819318noreply@blogger.comBlogger145125tag:blogger.com,1999:blog-30370955.post-77936906083983730452013-06-05T11:09:00.002-06:002013-06-05T11:09:22.957-06:00Julian Live!Julian delivers the daily news on the Julian News Network!<br />
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<iframe allowfullscreen="" frameborder="0" height="315" src="http://www.youtube.com/embed/FpwWsLsFiAs" width="420"></iframe>David J Phillipshttp://www.blogger.com/profile/17452811418423819318noreply@blogger.comtag:blogger.com,1999:blog-30370955.post-84921973487804135782012-06-22T07:38:00.000-06:002012-06-22T07:38:09.710-06:00 <iframe allowfullscreen="" frameborder="0" height="360" src="http://www.youtube.com/embed/DSEHf1pQKK0?rel=0" width="480"></iframe><br />
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New video from the little man. Enjoy.David J Phillipshttp://www.blogger.com/profile/17452811418423819318noreply@blogger.comtag:blogger.com,1999:blog-30370955.post-16516072627927055722011-09-25T20:29:00.000-06:002011-09-25T20:30:25.723-06:00Julian and Daddy performing the 20th Century Fox title theme. Drum roll please.
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<iframe width="425" height="349" src="http://www.youtube.com/embed/RC9webHYXL4?hl=en&fs=1" frameborder="0" allowfullscreen></iframe>
David J Phillipshttp://www.blogger.com/profile/17452811418423819318noreply@blogger.comtag:blogger.com,1999:blog-30370955.post-68904553803675364742011-07-23T08:52:00.000-06:002011-07-23T08:52:56.735-06:00Another Stroll On The BeachJulian's last stroll on the beach in Carlsbad.<br />
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<iframe width="425" height="349" src="http://www.youtube.com/embed/fOTVKx6XG1Q?hl=en&fs=1" frameborder="0" allowfullscreen></iframe>David J Phillipshttp://www.blogger.com/profile/17452811418423819318noreply@blogger.comtag:blogger.com,1999:blog-30370955.post-7606409888239304652011-07-22T22:01:00.000-06:002011-07-22T22:01:04.607-06:00Carlsbad 2011<a href="http://www.facebook.com/media/set/?set=a.10150376988018835.432929.789793834&l=abe4e51e89&type=1">Check out photos from our family vacation to Carlsbad, CA.</a> So bummed we're leaving tomorrow morning. Gonna miss this place.<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiRn3qamXVS3hG-RYsn7VCdVvuBzlOVykfgl0Rjix5sleJqZ4jVGIHhk_uLitOqI0QVE1bV4e4ZDfkHywHhwiX4iVTN1C1_uefC6C-w940AFmm7f0rarLa-H4d3Ko-Ly9wxuCVT/s1600/DSC00922.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="140" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiRn3qamXVS3hG-RYsn7VCdVvuBzlOVykfgl0Rjix5sleJqZ4jVGIHhk_uLitOqI0QVE1bV4e4ZDfkHywHhwiX4iVTN1C1_uefC6C-w940AFmm7f0rarLa-H4d3Ko-Ly9wxuCVT/s640/DSC00922.JPG" width="640" /></a></div>David J Phillipshttp://www.blogger.com/profile/17452811418423819318noreply@blogger.comtag:blogger.com,1999:blog-30370955.post-30178740623626201242011-07-03T00:56:00.000-06:002011-07-03T00:56:22.964-06:00Julian's Home TourI'm uploading some video I shot today, specifically in response to requests to post some new videos of Julian, 'cause let's face it - it's been a long time... So here you go. Julian and I went through some model homes, and Julian was convinced there were some special letters that needed to be found... We had fun. <a href="http://www.youtube.com/watch?v=jIkVUONwbsI">Check it out here.</a>David J Phillipshttp://www.blogger.com/profile/17452811418423819318noreply@blogger.comtag:blogger.com,1999:blog-30370955.post-44577852846218829762011-05-11T06:19:00.000-06:002011-05-11T06:19:48.760-06:00Desert Adventures<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgpz3x7BLcAMLJnQAkxGwYfi09ATMuSWdcgj43XdYvjIMHNI7tiCJ14ygsMCMD6Nnzw_CENzTncfbZHArzGUx4r2UVgaJuaUknnNUyNJ5MbM7wRt5VITUfwpE1xNCfbqogb4Nce/s1600/IMG_1748.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgpz3x7BLcAMLJnQAkxGwYfi09ATMuSWdcgj43XdYvjIMHNI7tiCJ14ygsMCMD6Nnzw_CENzTncfbZHArzGUx4r2UVgaJuaUknnNUyNJ5MbM7wRt5VITUfwpE1xNCfbqogb4Nce/s200/IMG_1748.JPG" width="200" /></a></div>Some new pics of Julian at the <a href="http://www.facebook.com/media/set/?set=a.10150099752713835.317548.789793834&l=708b7c77df">Desert Botanical Gardens</a>.David J Phillipshttp://www.blogger.com/profile/17452811418423819318noreply@blogger.comtag:blogger.com,1999:blog-30370955.post-20355981409924225832011-03-26T18:57:00.000-06:002011-03-26T18:57:43.286-06:00Julian's new Tilley<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjeq15Mlomwb8ZlBnZ3SOr-4kL-QsrN4Ep6VPnFQvn6t4UfQLKEk5GiSVnboAwITxK2LSNyC60HOh_BfwCL-WqIEHaolKBJk3OpyVIk2lev_YR-siHKoXEt6KsCZiYBUA2xgC11/s1600/IMG_1561.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjeq15Mlomwb8ZlBnZ3SOr-4kL-QsrN4Ep6VPnFQvn6t4UfQLKEk5GiSVnboAwITxK2LSNyC60HOh_BfwCL-WqIEHaolKBJk3OpyVIk2lev_YR-siHKoXEt6KsCZiYBUA2xgC11/s200/IMG_1561.jpg" width="150" /></a>Check out the album of <a href="http://www.facebook.com/album.php?aid=379917&id=789793834&l=e03f600f4b">Julian sporting his new Tilley hat</a>.David J Phillipshttp://www.blogger.com/profile/17452811418423819318noreply@blogger.comtag:blogger.com,1999:blog-30370955.post-21760513425060898102011-03-26T13:22:00.001-06:002011-03-26T14:22:48.662-06:0003.26.2011 - Growing Up<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg7JctpkVwSsMAfu1rdXiN3aAJMFKXSzcwj1ox2lXxE0Cs1sFic3ByJoWJ306XwaQFqLKsDrKK9P70EohtfdaIXcr6M7qSTP6dZmNv90MXHWgGKT94DWge9tRS3o8mOTZmp_o4r/s1600/DSCF5820.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg7JctpkVwSsMAfu1rdXiN3aAJMFKXSzcwj1ox2lXxE0Cs1sFic3ByJoWJ306XwaQFqLKsDrKK9P70EohtfdaIXcr6M7qSTP6dZmNv90MXHWgGKT94DWge9tRS3o8mOTZmp_o4r/s200/DSCF5820.jpg" width="200" /></a></div>Howdy folks!<br />
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Seems like it's been forever since we posted anything new to Julian's blog. Overall, Julian is doing great! All three of us are at the tail end of some kind of respiratory/flu bug that seems to have been nagging us for over a month, but hopefully we're at the tail end of it now. It's good to know that Julian can weather that kind of ailment, even on immune suppression.<br />
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Some quick updates:<br />
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<ul><li>Since last post, one of Julian's docs from Palo Alto moved to the University Medical Center in Tucson, so we take him down there for his quarterly appointments now. Nice, since some of our dearest friends live in Tucson, and it gives us the chance for a visit, at least once a quarter.</li>
<li>Check some of our family photos <a href="http://www.facebook.com/album.php?aid=54673&id=789793834&l=4dc7534535">here</a>.</li>
<li>You can also check some pics from Julian's biopsy trip last May <a href="http://www.facebook.com/album.php?aid=239991&id=789793834&l=7ae231e830">here</a>.</li>
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We'll try to post more frequently, especially pictures & videos, so you too can watch Julian grow up!<br />
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Thanks for tuning in!<br />
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DavidDavid J Phillipshttp://www.blogger.com/profile/17452811418423819318noreply@blogger.comtag:blogger.com,1999:blog-30370955.post-30995118199035159562011-03-26T12:56:00.000-06:002011-03-26T12:56:32.996-06:0005.14.2010 - Wrapping The Day<i>From Julian's COTA journal</i><br />
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Julian went in for biopsy, and the Docs were unable do it: the organ was surrounded by liver and bowel, such that they were unable to get an unobstructed point of entry into the kidney. The Doc in charge "rolled him every which way" to try to line up a clean shot, but in the end decided it wasn't worth risking a punctured bowel to get a tissue sample. So they didn't even insert the needle.<br />
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If Julian's condtion were anything less than stellar, or if he were in rejection, they probably would have gone for it. But because he's doing so well, and because this is only a scheduled protocol biopsy, it's acceptable to skip it.<br />
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We're happy with the decision, because a) it's indicative of Julian's overall great condition, and b) the follow-up care on our end is a hardship on all parties involved. "No running or jumping for two weeks following the biopsy." Really? That's pretty much all he does right now.<br />
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So, now that Julian has recovered from anasthesia, our goal for the day is to get him fed and rehydrated. This weekend we'll take it easy. Monday we have a follow-up with the Docs to talk about where we go from here, followed by a fluoroscopic study on J's bladder to check for signs of reflux and overall bladder health. After that, the drive home.<br />
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Thanks to all of you who prayed for us. Julian did great today, recovered well from the ordeal, and we pray that he'll continue to do well for years to come.<br />
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DavidDavid J Phillipshttp://www.blogger.com/profile/17452811418423819318noreply@blogger.comtag:blogger.com,1999:blog-30370955.post-81207042177561593432011-03-26T12:55:00.000-06:002011-03-26T12:55:03.810-06:0005.14.2010 - Biopsy Today<i>From Julian's COTA journal</i><br />
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Hey all - Julian's 2-year post-transplant biopsy is today. We check him in to the day clinic at Lucile Packard Children's in about an hour and a half (8:30 a.m.). It's an all-day event, mainly because Julian has to lie still for eight hours (!) post-procedure (to give the blood clot resulting from the biopsy time to form). <br />
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Great day yesterday: Dr's appointments and an ultrasound, followed by dinner at the Ferry Building in San Francisco. A nice break.<br />
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Please pray all goes well today. I'll be posting updates to Twitter as the day progresses. Follow along at <a href="http://www.twitter.com/dphillips">www.twitter.com/dphillips</a> for updates.<br />
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Thanks.<br />
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DavidDavid J Phillipshttp://www.blogger.com/profile/17452811418423819318noreply@blogger.comtag:blogger.com,1999:blog-30370955.post-47678217852663700432011-03-26T12:52:00.002-06:002011-03-26T12:52:51.820-06:0005.13.2010 - Two-year Biopsy<i>From Julian's COTA journal</i><br />
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Long time, no post. We're back in Palo Alto for Julian's two year post-transplant biopsy. Julian is doing great, and we can hardly believe it's been so long already since the kidney transplant! God has been good indeed.<br />
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Checked in yesterday at the Ronald McDonald House. This morning, a marathon Dr's appointment, followed by an ultrasound this afternoon. Tomorrow, the biopsy itself. Then the weekend to recover. On Monday, follow-up clinics in the a.m., then a fluoroscpic study to check on the state of his bladder/kidney connection on Monday afternoon. After that, the long drive home.<br />
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It's been a good, albeit exhausting trip so far. Pray for a successful procedure, and safe travel home. Will post more as the weekend progresses.<br />
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DavidDavid J Phillipshttp://www.blogger.com/profile/17452811418423819318noreply@blogger.comtag:blogger.com,1999:blog-30370955.post-68496180558769293422011-03-26T12:51:00.002-06:002011-03-26T12:51:36.496-06:0011.26.2009 - Happy Thanksgiving<i>From Julian's COTA journal</i><br />
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Happy Thanksgiving everybody! It's been a while since we've posted anything to the blog, but no news is good news. Julian is doing great!<br />
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We're working on the annual newsletter, hoping to get them in the mail sometime next week. Once we have the final draft, we'll make it available electronically as well.<br />
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DavidDavid J Phillipshttp://www.blogger.com/profile/17452811418423819318noreply@blogger.comtag:blogger.com,1999:blog-30370955.post-45177151450945792002011-03-26T12:50:00.000-06:002011-03-26T12:50:08.162-06:0010.13.2009 - Happy Birthday!<i>From Julian's COTA journal</i><br />
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Julian woke up this morning a bona fide five-year-old. He's quite pleased with himself, and already making plans for what he'll do when he turns 6. It's amazing watching little ones grow up. It seems to happen in big steps, like certain things falling into place or a switch is turned on, and one day he wakes up with the wit to negotiate for extended bed-times, make plans for the future, and crack jokes all on his own. It's so much fun being Julian's parent!<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiYQxAq6fx3veB9dmv8yskLO8Q-XOeLkX3BiXS1Iyt5YXkvLuQQh9GOe0gKMU-bvRaW6TdNWQdrhfuKtkZgYecQyBkg7B-ueQdRXrp743oNcVrx72tGq4UxW016IWoAEgmYfaoh/s1600/IMG_0410.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiYQxAq6fx3veB9dmv8yskLO8Q-XOeLkX3BiXS1Iyt5YXkvLuQQh9GOe0gKMU-bvRaW6TdNWQdrhfuKtkZgYecQyBkg7B-ueQdRXrp743oNcVrx72tGq4UxW016IWoAEgmYfaoh/s200/IMG_0410.jpg" width="200" /></a>One of the things Julian has become acquainted with this year is Star Wars! In particular, he likes any scene where R2D2 (pronounced "oo-dee-doo-dee") is present. We were quite pleased to find out a couple weeks ago that Hopekids.org had tickets for us to go see Star Wars On Stage, a spectacular hi-def multi-media arena show, complete with live orchestra playing the iconic Star Wars themes, and narrated live (!) by Anthony Daniels, the gentleman who played C3PO in the saga. What a show! But the highlight had to be when we were roaming the halls, and who should we bump into? Oo-dee-doo-dee! What a thrill! Turns out Oo-dee-doo-dee is as big as Julian, and was as happy to see Julian as Julian was to see him, spinning and rolling around, and looking Julian in the eye! Wish we had it on video.<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhvXZ9hmXWaJAKWxnJaWhR77okaQb6NjilQw5rH148Z_F81FoRksdVn0dYgNeTgcU0QMHqZNa83_2Y2WXDR1IPmNt6BVIeg2ck6WUWCzrh0bSFbUp8-6BJja-pyBYUQEVu98m-2/s1600/DSCF3204.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhvXZ9hmXWaJAKWxnJaWhR77okaQb6NjilQw5rH148Z_F81FoRksdVn0dYgNeTgcU0QMHqZNa83_2Y2WXDR1IPmNt6BVIeg2ck6WUWCzrh0bSFbUp8-6BJja-pyBYUQEVu98m-2/s200/DSCF3204.jpg" width="159" /></a>We're laying low today, and will have a small, family celebration this weekend. Julian has received some very thoughtful packages from family members near and far, and we'll enjoy opening those this weekend. One of the things that has become something of a birthday tradition for us is these crazy "ugly dolls" (that's really what they're called), and we've taken to giving Julian one every birthday (starting when he turned 1). This year he got 2 new friends - 3 if you consider the big one in the picture is actually 2-sided (named "bop & beep"). We let Julian open those as soon as they arrived in the mail, and as you can see, they've bonded well already.<br />
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Happy birthday Julian!David J Phillipshttp://www.blogger.com/profile/17452811418423819318noreply@blogger.comtag:blogger.com,1999:blog-30370955.post-82500981530113000152011-03-26T12:47:00.000-06:002011-03-26T12:47:38.079-06:0009.04.2009 - Update<i>From Julian's COTA journal</i><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgoDOGEHXeLREM9f5IeN9CQ_2hRfy7UXe1Lk1XC0LXbRkupv3sbn9fVyce_e2gKg0sptdc9DRiGvZLSxZVsy6Onc7m2RmT-d2sWt55l6LlaRKscjHACNx3Ywd15Q99WlEvnklnD/s1600/DSCF3052.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgoDOGEHXeLREM9f5IeN9CQ_2hRfy7UXe1Lk1XC0LXbRkupv3sbn9fVyce_e2gKg0sptdc9DRiGvZLSxZVsy6Onc7m2RmT-d2sWt55l6LlaRKscjHACNx3Ywd15Q99WlEvnklnD/s200/DSCF3052.jpg" width="200" /></a>Well, it's been a while since our last post. We've enjoyed a nice, hot summer here in Gilbert, AZ, and overall, Julian is doing great! The only notable change for us here is that Julian has started Pre-K! That's right - our little man is now old enough for Pre-school. How did this happen - where has the time gone?!<br />
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We count ourselves blessed every time we look at our little guy, and continue to thank God for his health and overall growth and progress.<br />
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DavidDavid J Phillipshttp://www.blogger.com/profile/17452811418423819318noreply@blogger.comtag:blogger.com,1999:blog-30370955.post-44912631068021890702011-03-26T12:43:00.002-06:002011-03-26T12:43:55.452-06:0007.02.2009 - Give Kids The World<i>From Julian's COTA journal</i><br />
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How could I forget?<br />
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A big part of our Make-A-Wish trip last week had to do with where we actually stayed. Many thanks to the staff and volunteers at Give Kids the World, an incredible themed village of houses, restaurants and amenities whose sole purpose is to provide lodging for families like ours. They provided us with a wonderful place to rest with our group when we weren't running around the theme parks. You can visit them <a href="http://gktw.org/">here</a>.<br />
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DavidDavid J Phillipshttp://www.blogger.com/profile/17452811418423819318noreply@blogger.comtag:blogger.com,1999:blog-30370955.post-68371382438168133292011-03-26T12:42:00.000-06:002011-03-26T12:42:18.550-06:0007.01.2009 - Make A Wish!<i>From Julian's COTA journal</i><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjEsHcN4qtAINFkqbcD3MD-GXTfFX8QHH-gQjx-OQt_iBfA0-1_7A2bA61P8PB3iryVbq-DxMxgjQFjQc0oSUMasaRSPYOdbiHXhUMFmHioQaB5lpNxyOIiuF3tJobKbCXxad9i/s1600/IMG_0050.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjEsHcN4qtAINFkqbcD3MD-GXTfFX8QHH-gQjx-OQt_iBfA0-1_7A2bA61P8PB3iryVbq-DxMxgjQFjQc0oSUMasaRSPYOdbiHXhUMFmHioQaB5lpNxyOIiuF3tJobKbCXxad9i/s200/IMG_0050.jpg" width="200" /></a>We arrived home last night from an incredible week at Disneyworld in Florida with the Arizona Make-A-Wish Foundation. It was amazing! We had the opportunity to meet several other wonderful Make-A-Wish families from all over the country, each facing their own unique set of challenges. We spent a week exhausting ourselves at Walt Disney World, an incredible experience all on its own. And we got to meet and spend time with our trip hosts, Kurt and Brenda Warner, along with their children. Kurt Warner is the quarterback for the Arizon Cardinals. He and his wife Brenda have a beautiful family. Kurt's foundation, First Things First, sponsored this trip. You can learn more about Kurt's foundation <a href="http://www.kurtwarner.org/">here</a>.<br />
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It was a fantastic week, and we had a great time! Thanks to everyone at Make-A-Wish and First Things First for making it happen - this really was a once-in-a-lifetime trip.<br />
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DavidDavid J Phillipshttp://www.blogger.com/profile/17452811418423819318noreply@blogger.comtag:blogger.com,1999:blog-30370955.post-50541358063392722732011-03-26T12:37:00.002-06:002011-03-26T12:37:59.524-06:0006.22.2009 - Travel Bug<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjIrTG3TZOlScJgNi1eFBEZFPcvDRPRKcwYBYVcEyyPxDZw_V51RkFL0MvseWBms6Nm7ajyhCjoMAjlbj7L2Y5foWpvDg4LpbLaCL9nrXOQKyYJJyNt1kbZc28uTXGtI7agPdS3/s1600/DSCF2695.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjIrTG3TZOlScJgNi1eFBEZFPcvDRPRKcwYBYVcEyyPxDZw_V51RkFL0MvseWBms6Nm7ajyhCjoMAjlbj7L2Y5foWpvDg4LpbLaCL9nrXOQKyYJJyNt1kbZc28uTXGtI7agPdS3/s200/DSCF2695.jpg" width="200" /></a></div><i>From Julian's COTA journal</i><br />
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As you can see, Julian can't wait to leave for Disneyworld on his Make-A-Wish trip. I hauled the luggage to start packing, and he immediately "pitched in." He's super-excited! The Make-A-Wish arrives at 7:00 tomorrow morning. It should be a great trip.<br />
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DavidDavid J Phillipshttp://www.blogger.com/profile/17452811418423819318noreply@blogger.comtag:blogger.com,1999:blog-30370955.post-89170735992966983372011-03-26T12:36:00.000-06:002011-03-26T12:36:16.310-06:0006.02.2009 - Two Weeks Post-biopsy<i>From Julian's COTA journal</i><br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiDE3O01j6XsGxELpM1anFB71ZCF7pSHCCtlVVt4VuyrHD-5dh2e_WJJ7_qGzooN2NzHTEevC2_8A_mruH4ve1GmMMtee8FnkInE7sLp0cpv3fZ5elVA_GDM9fPyqupQ3H5y8Sw/s1600/DSCF2548.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiDE3O01j6XsGxELpM1anFB71ZCF7pSHCCtlVVt4VuyrHD-5dh2e_WJJ7_qGzooN2NzHTEevC2_8A_mruH4ve1GmMMtee8FnkInE7sLp0cpv3fZ5elVA_GDM9fPyqupQ3H5y8Sw/s200/DSCF2548.jpg" width="200" /></a></div>It's been two weeks since the biopsy, and Julian is doing great! In fact, today we can finally remove any behavioral restrictions, which is a relief, because it's darn near impossible to keep someone with this much energy from jumping up and down and running around. Julian has been a good sport though, so we rewarded him with a dip in the pool outside. We had a ball, as you can tall from the look on his face.<br />
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We also changed the NG tube today, which Julian was not very happy about. However, it does mean we were able to get a few pics of him sans tube, which is always nice.<br />
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It's remarkable how quickly he's growing. If you go back and look at pictures taken around the time of the transplant, he's really quite small. But Julian went from 25 lb. to 45 lb. in the span of 12 months. He's much taller as well. He used to be considerably smaller than other kids his own age; now he's as big or bigger. Fulfilling his genetic potential, as it were - I think that's how the docs in Palo Alto put it. Grow Julian Grow.<br />
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Check out the additional pics in the photo album. Have a good night, and thanks for checking in.<br />
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DavidDavid J Phillipshttp://www.blogger.com/profile/17452811418423819318noreply@blogger.comtag:blogger.com,1999:blog-30370955.post-44809363880376820892011-03-26T12:34:00.002-06:002011-03-26T12:34:43.864-06:0005.25.2009 - Happy Memorial Day<i>From Julian's COTA journal</i><br />
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Happy Memorial Day everyone!<br />
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<a href="http://www.youtube.com/watch?v=raNfd6ncDxc">Here's a little video</a> we shot last week in Half Moon Bay, when we were in CA for Julian's biopsy.David J Phillipshttp://www.blogger.com/profile/17452811418423819318noreply@blogger.comtag:blogger.com,1999:blog-30370955.post-60467298631831802332011-03-26T12:33:00.000-06:002011-03-26T12:33:14.608-06:0005.24.2009 - Home Sweet Home<i>From Julian's COTA journal</i><br />
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We're home.<br />
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It's been a good, but long, trip, and it'll be good to sleep in our own beds again tonight. Julian is well, and you can read from previous posts that the biopsy results were good. We're thrilled that he's doing so well.<br />
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And not it's time for bed.<br />
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DavidDavid J Phillipshttp://www.blogger.com/profile/17452811418423819318noreply@blogger.comtag:blogger.com,1999:blog-30370955.post-32608259637448212862011-03-26T12:32:00.000-06:002011-03-26T12:32:16.929-06:0005.21.2009 - Good News<i>From Julian's COTA journal</i><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEguEbNJKV4FauMepvoUM-WAA3RE14QrVrrd9586y5jDjqj5z7TvXFtht2CHg5Sv6jqvs9fCewvKuDMqwoaCUuUBmHpsm9m2IxF1R4-dD5FQ2WLSDa4qrV3_si-_uYEn_P_cBnK0/s1600/DSCF2340.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEguEbNJKV4FauMepvoUM-WAA3RE14QrVrrd9586y5jDjqj5z7TvXFtht2CHg5Sv6jqvs9fCewvKuDMqwoaCUuUBmHpsm9m2IxF1R4-dD5FQ2WLSDa4qrV3_si-_uYEn_P_cBnK0/s200/DSCF2340.jpg" width="200" /></a>We went to Half Moon Bay this a.m. to revisit some of our old stomping grounds. What a beautiful day. No actual beach time, but it was great to see the sights and listen to the waves. We found a picnic table at the marina where we ate our lunch, and <a href="http://www.youtube.com/watch?v=raNfd6ncDxc">Julian found a ladybug</a>. We played with it for half an hour. It was still alive when we left.<br />
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Then we headed back to LPCH to review biopsy results with the docs. Good news: No rejection, no medicine toxicity. One concern they will study further has to do with what looked like some kind of reflux, but we're told a) it's really common with this kind of biopsy, and b) it's unlikely any actual reflux is taking place, due to Julian's unique urological physiology. So, they're not worried, but will look into it further.<br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvKcrtGPGtn83jzcyc8d0MguvMTJPRzEtVSBVM_6B-kY9zFvWLGmrwWPpshVhfjcv6Yc__11i4l74rQfh5rylwvsXJys7f5Szq3meTWBXFoH2olXmEIVPc1dItmV3LtKSiwwp-/s1600/DSCF2327.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="133" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjvKcrtGPGtn83jzcyc8d0MguvMTJPRzEtVSBVM_6B-kY9zFvWLGmrwWPpshVhfjcv6Yc__11i4l74rQfh5rylwvsXJys7f5Szq3meTWBXFoH2olXmEIVPc1dItmV3LtKSiwwp-/s200/DSCF2327.jpg" width="200" /></a></div>Tomorrow, we head back to LA, where we'll spend a day with friends. Then Sunday, we'll drive back to Phoenix - home sweet home.<br />
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Thanks for tuning in.<br />
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DavidDavid J Phillipshttp://www.blogger.com/profile/17452811418423819318noreply@blogger.comtag:blogger.com,1999:blog-30370955.post-76314489966185671962011-03-26T12:28:00.000-06:002011-03-26T12:28:47.080-06:0005.20.2009 - And We're Back!<i>From Julian's COTA journal</i><br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi15PwGgYJSKcYa7XJuOb15YOF1RWvwZlLlCl4zwn02lf3lCPPdw5bv0NzxYlYdp59Jrl2N7E2UeV8cXQM6TncbDE0JgIW3xwAB4pEyxqvHhjiwOEnNs_nu_l9rdz-aWJO4IUJu/s1600/DSCF2289.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi15PwGgYJSKcYa7XJuOb15YOF1RWvwZlLlCl4zwn02lf3lCPPdw5bv0NzxYlYdp59Jrl2N7E2UeV8cXQM6TncbDE0JgIW3xwAB4pEyxqvHhjiwOEnNs_nu_l9rdz-aWJO4IUJu/s200/DSCF2289.jpg" width="200" /></a></div>Julian woke up this morning his sunny, singing self. Right now he's playing with his Thomas Train engines and his new Troublesome Trucks. He's been saving for them, but we decided to buy them for him yesterday for being such a good sport throughout the day. The hard part now is going to be keeping him from jumping and running around. For TWO weeks. Seriously.<br />
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One thing I didn't mention in yesterday's post had to do with the impression Julian seems to make on people. Repeatedly. When we showed up at the Day Hospital (the short-stay unit within the Children's Hospital), all 4 of the nurses on duty remember him from his previous visits (biopsies and infusions). The last time he saw any of them was in November. And when I had to go down to Admissions to pick up a new parking pass (bear in mind, Julian was NOT with me at this point), the woman asked "patient name?" I replied "Phillips." She asked "Julian?" When I confirmed, she went all ga-ga, asked how he was doing, asked for the update, etc.<br />
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I'm always struck by the impression Julian seems to make on other people. He's so personable - and so cute - people remember their encounters with him for months - years even. It's funny, because at the same time, I can tell that I've not made the same impression on the same people. And I wonder if God has something special in mind for our little man. In the mean time, we'll do our best to take care of him, and enjoy the time we have together.<br />
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DavidDavid J Phillipshttp://www.blogger.com/profile/17452811418423819318noreply@blogger.comtag:blogger.com,1999:blog-30370955.post-23858115659318958582011-03-26T12:27:00.000-06:002011-03-26T12:27:10.493-06:0005.19.2009 - Biopsy<i>From Julian's COTA journal</i><br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEimBgD53ycmgjFnL5GRbnnGmHhaP9k2lO22Zg-QdQxBOLbYiTm8ydydNjhPW3-B1-e5RjUPHJd3gXvsWYYNHS5elHe9gVsl1qK3I5tjDThTAIVehX98OOdxixewFbMapPsIiIHk/s1600/DSCF2286.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEimBgD53ycmgjFnL5GRbnnGmHhaP9k2lO22Zg-QdQxBOLbYiTm8ydydNjhPW3-B1-e5RjUPHJd3gXvsWYYNHS5elHe9gVsl1qK3I5tjDThTAIVehX98OOdxixewFbMapPsIiIHk/s200/DSCF2286.jpg" width="200" /></a></div>We reported to LPCH this morning at 7:30 for Julian's biopsy, which was to take place at 1:00 p.m. At 3:00 p.m. they finally took Julian into the O.R. for the procedure. Around 4:00, Dr. Alexander came out to confirm that the biopsy had run smoothly - no bleeding, no fistulas, no knicked bowel - just a clean tissue sample.<br />
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Julian had no problem coming out of anesthetic - unlike previous procedures, when it took hours (literally) for him to be able to breath normally on room air (i.e. without oxygen). What a relief!<br />
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We spent the rest of the day in the Day Hospital, where we watched Wall-E and Kung Fu Panda at least twice each, until we satisfied the doctors' orders that Julian lay still for 8 hours following the procedure. We left around 11:00.<br />
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We're back at the Donald House now. Julian is asleep. All is well with the world.<br />
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We'll get preliminary results back on Thursday afternoon. After that, we should be set to begin the journey home.<br />
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Thanks for tuning in. Please check back to see how we're doing.<br />
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DavidDavid J Phillipshttp://www.blogger.com/profile/17452811418423819318noreply@blogger.comtag:blogger.com,1999:blog-30370955.post-9898451970198289292011-03-26T12:25:00.000-06:002011-03-26T12:25:10.157-06:0005.18.2009 - Annual Check-Up<i>From Julian's COTA journal</i><br />
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<div class="separator" style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPnRFcrRFCKF4tMDA9SwMFl1LjzxxxACP1i7_UjjS9OSljuvX3RIwgALyXDyfx6we0DpL89Dl3hu2iqARYbIYc9CvOvVvDkzEVWTodbWE0GMmudMTHJ2rwehHNDUThl5n83EmQ/s1600/DSCF2193.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPnRFcrRFCKF4tMDA9SwMFl1LjzxxxACP1i7_UjjS9OSljuvX3RIwgALyXDyfx6we0DpL89Dl3hu2iqARYbIYc9CvOvVvDkzEVWTodbWE0GMmudMTHJ2rwehHNDUThl5n83EmQ/s200/DSCF2193.jpg" width="200" /></a></div>Cheryl Humble, Julian’s kidney donor, arrived on Sunday morning for her annual check-up. We went for a walk around the mall across the road, where there happens to be a display of play-houses that have been designed, built and donated by local architects. The houses are being raffled off for charity, but until then, they’re on display. We had a great time walking around, exploring the mini-homes. After that, it was time for a nap and dinner. A good day.<br />
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This morning, we went for Julian’s pre-biopsy check-up, and Cheryl went for her annual. Julian and Cheryl are both doing very well. A couple tweaks to Julian’s med regimen, an adjustment to his daily fluid intake, and overall reduction in the number of times he has to go for labs. All routine. The docs are thrilled with his progress, and so are we.<br />
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Tomorrow, we check in for Julian’s biopsy at 8:00 a.m. Please pray that all goes well, as there are several real risks to this kind of procedure, including bleeding, blood clots, and general infection. We content ourselves in the knowledge that these doctors do this kind of thing all the time, and that God will be with them and Julian in the operating room.<br />
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Stacy drove Cheryl to the airport this afternoon. We should get preliminary results back on Thursday, and if all goes to plan, we could be headed home as early as Friday morning.<br />
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Stay tuned.David J Phillipshttp://www.blogger.com/profile/17452811418423819318noreply@blogger.com